Families of children with special health care needs face a number of unique challenges that require high-quality medical homes to provide comprehensive medical care, financial and social support.
In the clinical report, “Parent-Provider-Community Partnerships: Optimizing Outcomes for Children With Disabilities,” in the October 2011 issue of Pediatrics (published online Sept. 26), suggestions on how to effectively support children with disabilities and their families are discussed.
It is important that families are seen as a valued partner in decision-making, health care, education and social services. Pediatricians need to recognize the needs of parents and siblings of children with disabilities, and offer strategies to help them maintain their own physical and mental well-being. Families also need to be aware of the financial support available to them, including Medicaid, family medical leave programs, and Supplemental Security Income.
Authors suggest policy-makers continue to promote health insurance programs that benefit children with disabilities under the Affordable Care Act.