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Prenatal Genetic Counseling

What is Prenatal Genetic Counseling?

Prenatal genetic counselors work with individuals, couples, or families who have an increased chance of having a child with a birth defect or genetic condition.

Those who are already pregnant or are considering having a child in the future can meet with a prenatal genetic counselor to learn more about the condition in question, understand their risks more clearly, and discuss options for prenatal screening, testing, and/or assisted reproduction techniques such as sperm and egg donation.

During pregnancy, if a baby is found to have a birth defect or genetic condition you may be referred to a prenatal genetic counselor. The counselor will help the expecting parent(s) understand the medical information, what to expect, how to prepare, and options.

​Prenatal counselors also help many families who do not have an increased chance of having a child with a birth defect or genetic condition to understand prenatal screening and testing options. Procedures such as blood tests and ultrasounds may be able to give a better idea if a developing baby has a chance of having birth defects or a genetic condition.

Why See a Prenatal Genetic Counselor?

If you:

  • Are worried about a genetic condition or a disease that runs in your family.
  • Have a child who is affected with a genetic condition and are thinking about having another child in the future.
  • Have family members with an intellectual disability or birth defects.
  • Have a history of infertility or pregnancy losses (miscarriages or stillbirths).
  • Are concerned that your health or lifestyle poses a risk to the pregnancy.
  • Are concerned about risks to the pregnancy associated with increasing parental age.
  • Receive abnormal prenatal screening or ultrasound results.
  • Are concerned that you are at increased risk of being a carrier of a genetic condition because of your ethnic background (some diseases are more common in certain ethnicities).
  • Are pregnant and the baby has been diagnosed with a birth defect or genetic condition.
  • Have taken a medication or drug during pregnancy or have been exposed to a chemical and are concerned that it might cause a problem for the baby.

Depending on the reason for the visit, some things a genetic counselor may do during an appointment are:

  • Go over your family and medical history with you.
  • Figure out and explain your chances of having a child with specific genetic conditions.
  • Help you explore and make decisions about your options for screening and testing before and during pregnancy.
  • Help you interpret screening or testing results.
  • Help you understand medical and genetic information.
  • Provide you with information about any problems detected during pregnancy and help you understand your options.
  • Provide counseling and emotional support.
  • Refer you to support and advocacy networks.

Additional Information:


Last Updated
11/21/2019
Source
Adapted from Making Sense of Your Genes: A Guide to Genetic Counseling (Copyright © 2008 National Society of Genetic Counselors)
The information contained on this Web site should not be used as a substitute for the medical care and advice of your pediatrician. There may be variations in treatment that your pediatrician may recommend based on individual facts and circumstances.
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